The Law and Ethics of Data Sharing in Health Sciences

Detalhes bibliográficos
Autor Corporativo:	SpringerLink (Online service)
Outros Autores:	Corrales Compagnucci, Marcelo (Editor), Minssen, Timo (Editor), Fenwick, Mark (Editor), Aboy, Mateo (Editor), Liddell, Kathleen (Editor)
Resumo:	XIII, 200 p. 20 illus., 12 illus. in color. text
Idioma:	inglês
Publicado em:	Singapore : Springer Nature Singapore : Imprint: Springer, 2024.
Edição:	1st ed. 2024.
Colecção:	Perspectives in Law, Business and Innovation,
Assuntos:	Medical laws and legislation. Bioethics. Information technology > Law and legislation. Mass media > Law and legislation. Civil rights. European communities. Medical Law. IT Law, Media Law, Intellectual Property. European Fundamental Rights and Freedoms.
Acesso em linha:	https://doi.org/10.1007/978-981-99-6540-3
Formato:	Recurso Electrónico Livro

Sumário:

Introduction: The Dynamic Context & Multiple Challenges of Data Sharing Today
The GA4GH Regulatory and Ethics Work Stream (REWS) at 10: An Interdisciplinary, Participative Approach to International Policy Development in Genomics
Assessing Public and Private Rights of Action to Police Health Data Sharing
Patient Perspectives on Data Sharing.

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